"What are you or will you be doing in 2010 to create change and how will winning this technology bundle help your efforts?" I want to help in efforts of fundraising and getting the word out about cystic fibrosis since i have 3 kids who have cf this would help me when i'm not at home since my kids are allways at the doctors plus at metings since I do speaking for fundraisers and would to stay in touch with new parents with lots of questions.

Kayla is finishing up another round of ivs we got it before she need to be put in the hospital. well I have some good News Kayla don't have an eating disorder its all a control issue!!!!! she has been doing great she gained 2 pounds in the last month she finally is 64 lbs still needs a lot more weight to stay healthy but that is a start. Today is a snow day we had so much snow its as high as our pool deck i would lose the kids if we went outside to play and we have more coming on monday ugh! I hate snow!

I've been entering more giveaway for babys since my brother and his wife are expecting so far I won a Bumbleride Stroller and I'm so jelouse that is a sweet ride only if i could shrink one of my kids. My baby is turning 6 wow how time flys and now i have the baby blues .

Man do I hate Hershey Medical Center!!! they turned me into childeren and youth because Kayla is under weight and I didn"t take her to a appointment that was my choice SHE DON'T HAVE AN EATING DISORDER!!!! she just don't eat much because she isn't hungry because you give her 2,000 calories at night so now they want to take her away because she is 63lbs and it just makes me so mad! How many kids with cystic fibrosis are heavy? most are under weight duh your the doctor and don't even know that! thats funny that they only say about Kayla I have 2 boys who have CF and nothing is even said about them!UGH I just want to scream! f you have a child and it needs to go to Hershey RUN!!!! do not go find a better hospital!

UGH!!!!! why when you show a hair cutter a picture they always mess it up I should know better then just get it cut all one lenght now it so short i look like a boy and its all chop not jut even I HATE IT!!!!!!!! I know it will grow back back but when? Every time I look in the mirror I want to cry I miss my shoulder lenght hair.
Kayla is going back to school after being home since October 19.She don't want to go back and I don't want to go outside but life goes on and w have to do things we don't like or know better and should go with my gut. Kayla so far has raised $40.00 for her May 1st walk wish it was more but with the holidays no oe wants to give her a $1.00. we are selling subs but won't know the total until all sub papers are in which will be soon I'm hoping she can reach her goal she has been doing wonderful on treatments and putting on weight.time to get kids to school

need 2,988 more to reach kayla's goal!!! 12 people so far gave money thank you!!!!! i know we can reach this goal we have until May 1st to reach it

So far a good morning! kids have off of school ugh i love my alone time, how do you get a 6 year old to stop tattling? he is in first grade and his teacher had a baby 2 weeks ago and a sub is taking over until she comes back and the sub has this thing called the tattling turtle and ever since that he tattles on his brothers and most of the time is about nothing I SO HATE TATTLING! . WOW Ethan is getting big he now weighs 67lbs that is a nice size for a child with CF. Some one said that CF is a blessing what? a blessing I know that its not to our family I don't wish CF on anyone and that a person with CF isn't limited? yes they can do what a normal person can do but they aren't normal i know i don't have to do vest for 30minutes 4 times a day and breathing treatments and take a pill everytime i eat and other meds just to stay healthy so how can't that be limited? i just want my kids to be normal and just be able to take a vacation and not have to go back to the motel for treatments or have to take the hole house so they get everything they need to stay healthy. I just don't know what people think,Its hard as a mother not knowing when your child is going to die but knowing that a child with CF can die earlier then a healthy child but i'm not saying that i would change my life God gave me 5 kids I'm very happy for that and he gave me 3 extra special kids I still don"t know why I'm not a strong person i get so upset and worried about everything and I'm a big cry baby.

kayla still needs 2,994 people to donate $1.00 please help her and others with cystic fibrosis! i know we can do it please if you see this post pass it along to everyone its $1.00 i know alot of people don"t have the funds but its not going in our pockets its for funding to find a cure!!!!