Wednesday, January 13, 2016
Where my life is now still stressful and not normal. Kayla is 17 a new driver and has a boyfriend of 5 months she has had a double lung transplant almost 3 years ago (2-13-13) it has been a long rocky road but it has been a big change in our lives. We go to Pittsburgh PA every 2 months for a clinic visit and a biopsy she has had mild rejection 2 times she is still very small only 4'10 and 80lbs. The boys Ethan is 14 (will be 15 in March) and still hasn't been hospitalized for his cf. Zach is 14 and is growing like a weed. Kayden is 13 and is growing just got glasses now Zach is the only child without glasses. And the Baby of the family is Dylan he is 12 still hasn't been hospitalized for his cf. Went to Disneyworld for the first time On March 14 2014 It was Ethan make a wish and went for Dylan's to Disney World on Feb13 2015 and our Family has been dreaming and wishing to go Back. Not only is it a magical place it left us feeling normal and forgetting about the daily treatments and the meds and the worries of a Cystic fibrosis/Transplant life I would love to go every year to give the family great memories but will never happen again just not in our budget sucks never having money for fun things. Been looking for a job but I have been out of the workforce for 17 years its hard to find one.