Monday, November 23, 2009

UGH!!!!! why when you show a hair cutter a picture they always mess it up I should know better then just get it cut all one lenght now it so short i look like a boy and its all chop not jut even I HATE IT!!!!!!!! I know it will grow back back but when? Every time I look in the mirror I want to cry I miss my shoulder lenght hair.
Kayla is going back to school after being home since October 19.She don't want to go back and I don't want to go outside but life goes on and w have to do things we don't like or know better and should go with my gut. Kayla so far has raised $40.00 for her May 1st walk wish it was more but with the holidays no oe wants to give her a $1.00. we are selling subs but won't know the total until all sub papers are in which will be soon I'm hoping she can reach her goal she has been doing wonderful on treatments and putting on weight.time to get kids to school

Friday, November 13, 2009

need 2,988 more to reach kayla's goal!!! 12 people so far gave money thank you!!!!! i know we can reach this goal we have until May 1st to reach it
So far a good morning! kids have off of school ugh i love my alone time, how do you get a 6 year old to stop tattling? he is in first grade and his teacher had a baby 2 weeks ago and a sub is taking over until she comes back and the sub has this thing called the tattling turtle and ever since that he tattles on his brothers and most of the time is about nothing I SO HATE TATTLING! . WOW Ethan is getting big he now weighs 67lbs that is a nice size for a child with CF. Some one said that CF is a blessing what? a blessing I know that its not to our family I don't wish CF on anyone and that a person with CF isn't limited? yes they can do what a normal person can do but they aren't normal i know i don't have to do vest for 30minutes 4 times a day and breathing treatments and take a pill everytime i eat and other meds just to stay healthy so how can't that be limited? i just want my kids to be normal and just be able to take a vacation and not have to go back to the motel for treatments or have to take the hole house so they get everything they need to stay healthy. I just don't know what people think,Its hard as a mother not knowing when your child is going to die but knowing that a child with CF can die earlier then a healthy child but i'm not saying that i would change my life God gave me 5 kids I'm very happy for that and he gave me 3 extra special kids I still don"t know why I'm not a strong person i get so upset and worried about everything and I'm a big cry baby.

Thursday, November 12, 2009

kayla still needs 2,994 people to donate $1.00 please help her and others with cystic fibrosis! i know we can do it please if you see this post pass it along to everyone its $1.00 i know alot of people don"t have the funds but its not going in our pockets its for funding to find a cure!!!!

kayla's doctor appt.

Kayla had a doctor appt. yesterday and it was the best one that she ever had she gained weight!!!! she gained 3lbs in a week wow i have know idea how ahe did it because she doesn't eat she gets night time feeds through her g-tube but its nothing new. And her doctor said this is the best her lungs ever sounded since he had her (thats 2 years) so what happened there? could it have been the IPV machine? or the steriods? i still have no clue but we still have 1 more week of iv's oh yeah her pft went up from 33% to 43% she was that low we had put her on the lung trantsplant list but now we can hold off on new lungs!
Kayla is still trying to reach her goal in getting 3,000 people to donate a dollar she has some people sending some dollars but still has a long way to go if you live in PA and near jonestown we are selling subs to raise money for cystic fibrosis! and if anyone has ideas of fundraiser or has anything to give for chinese auctions or your a place of bussiness that would like to donate we would love to hear from you!

Monday, November 9, 2009

kayla has a wish she is looking for 3,000 people to donate $1.00 to the cystic fibrosis. She just wants to find a cure and wants to see how many wonderful people are out there. she is only 10 but she has big dreams and wants to live a normal life she has to miss out on alot of things because she cannot miss a treatment or she will get sick.One thing kayla has a hard time doing is eating she is never hungry we tried everything and nothing works and on top of that she ia very picky. if anyone would like to help here is the link

kayla's wish