Kayla had a doctor appt. yesterday and it was the best one that she ever had she gained weight!!!! she gained 3lbs in a week wow i have know idea how ahe did it because she doesn't eat she gets night time feeds through her g-tube but its nothing new. And her doctor said this is the best her lungs ever sounded since he had her (thats 2 years) so what happened there? could it have been the IPV machine? or the steriods? i still have no clue but we still have 1 more week of iv's oh yeah her pft went up from 33% to 43% she was that low we had put her on the lung trantsplant list but now we can hold off on new lungs!
Kayla is still trying to reach her goal in getting 3,000 people to donate a dollar she has some people sending some dollars but still has a long way to go if you live in PA and near jonestown we are selling subs to raise money for cystic fibrosis! and if anyone has ideas of fundraiser or has anything to give for chinese auctions or your a place of bussiness that would like to donate we would love to hear from you!